Conclusion

There are various things that may help you on your journey and support you in achieving your long term goals. You may wish to discuss the local options with your stroke nurse or the Chest Heart & Stroke Scotland Advice Line Nurses.
Remember you have come a long way, now think about where you want to go next.

If you want to discuss any of the issues raised in this section please contact:

Conclusion

Setbacks are part of the recovery process.
This might sound strange, but you learn from your mistakes and gain experience on how to do things differently next time.
You have also seen about how others go about it too. Do what works for you, you are the one in control.

Goal setting plan

You can download the goal setting plan [.pdf, 49 KB] to set your own goals.

Remember to ask yourself these questions:

What Is My Goal?

Ask yourself what you want to achieve? Keep in mind that small changes can make a big difference. Write your goal down, it’s a really positive first step in helping you to achieve success.

Where am I at just now?

In order to move forward and make progress its important to know where your starting point is. A scale can make it easier to record (0 = no progress & 10 = goal achieved) then you can see at a glance.

My Action List

So how best can you achieve your goal? Where do you start?
Write down some actions that will help you to achieve your goal.
When it comes to taking action you may wish to focus on one thing at a time…its up to you!

By When?

Setting a time limit on a goal can help you to get organised and can also help you keep on track. Remember to be flexible, it’s ok to adjust the time to whatever works best for you.

How Am I Doing?

Keeping track of the progress you are making helps to keep you motivated and can give your confidence a boost. Again you can see at a glance how far you’ve come!

What’s next on my List?

What’s next on your action list, or is it time to make a new goal? You decide and start the process again………

Your local chemist

Chemists can offer a lot more than just a place to pick up your pills and prescription.

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  • Chronic Medication Service (CMS) – The Chronic Medication Service allows you to register with a chemist of your choice for the provision of your medication. The pharmacist can help you understand and manage your medication effectively.
  • Dosette boxes – A dosette box can help you organise your medication into times and days of the week. Speak to your pharmacist about this if you think it will be useful.
  • Your pharmacist – Pharmacists, like other healthcare professionals, can offer advice and information on a vast range of healthcare needs.
  • Over the counter medicines – Your chemist can advise you on the most appropriate over the counter medication for your health needs.
  • Smoking cessation – As well as being in a position to advise on the most appropriate form of Nicotine Replacement Therapy (NRT), your local chemist provide you with many hints and tips to help you stop smoking.
  • Health Checks – Many community pharmacies offer the following health checks:
    • Blood pressure check and advice on how to keep healthy.
    • Cholesterol – A simple ‘finger prick’ test that can reveal your cholesterol level. Advice on how to reduce your cholesterol level is on hand too.
    • Blood glucose – A simple finger prick test that will let you know if your blood glucose level is too high, and what to do to keep it low or reduce it.
  • Weight management – Many Local Chemists can offer you weight loss support to help you maintain a healthy weight.

Something to try

It may be useful to find out what is available at your local pharmacy.

Thoughts, feelings and actions

Depression affects your day to day life, if you are feeling negative you are less likely to be active and keep yourself well. When you feel better you are more likely to connect more with the outside world.

After a stroke many people experience “stop start” days along the way.

  • Red Light feelings

    RedI woke up today and I just feel sad. I just can’t face things today. I am tired and this makes me irritable. I feel I am good for nothing so I am just going to stay in bed.

  • Amber Light feelings

    AmberI woke up today and I’m feeling okay. I’m not ready to tackle everything but I am getting there. I will get up, get ready and see what I can do today.

  • Green Light feelings

    GreenI woke up today and I feel better. I feel positive and this makes me more motivated. I want to do more today and perhaps get out and about. I can do this!

Something to think about

Can you identify with any of these feelings? Can you see how they affect your actions? Have a think over the last week. What colour days have you had? If you have had a number of red days you might want to speak to someone about this.

Key point

We have now looked at feelings and emotions and identified how you are feeling just now.

Before we go on to look at some ways that may help you, take some time to think about what you have done so far and when you are ready have a look at the next section which will show you some  strategies that can help.

Maybe I’m too sensitive

When your confidence is low it is easy to spot criticism and be too self critical.

Two female neigbhours chatting over the fence

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2 female neighbours chatting over garden fence

Neighbour 1: “I haven’t seen you since you had your stroke, but you’re looking well”
Neighbour 2: Thinks: “Looking well, she’s trying to say I’ve put on weight”

If someone said that to you, what would you think?
STOP and think. Do you always hear criticism?

Something to try

It may be helpful to talk to others about how sensitive you feel during conversations.

Going outside

Meet Allan. Allan has had to overcome some problems following his stroke in order to get out and about.  Lets see how he has got on. Tap on the picture to find out what Allan’s advice is.

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I am feeling too low to get out and about. I had to work out what was really stopping me. Was I depressed or was I just tired? I spoke to my GP about this. I find that getting out really helps lift my mood. I feel a lot better now.

What if I get stuck? I was worried that I might get myself into a situation and get stuck, 2 streets from home. Common sense helps. I keep an ete on the weather, don’t go out if it is too dark, wear the right shoes and always take my mobile phone with me

I need to pay more attention to things. My stroke didn’t affect my eyesight, but I do make an effort to pay more attention to things as I am not so quick on my feet, especially when I am crossing a road. I had a support worker who came out with me for a while to get used to this. I had to build up my confidence, but it was worth it.

What if over do it? As I started to go out more by myself I would over do it the odd time. I learned to pace myself by landmarks. I now measure everything out in the distance between lampposts! I used to be able to do one and take a rest. I can now to 2 at a time. Sometimes I can walk into town and get the bus back so I am not walking both ways, especially if I am carrying bags.

I am not confident around other people. I was worried about what other people thought about me and also a bit nervous in crowds, because I was not as steady on my feet as I was before. The first few times I went out, my son came with me and we did not go far or to busy places. This helped my confidence.

 

Keeping a record

Keeping a record of your sleep, which can also be called a sleep diary, helps you look in more detail at how you are sleeping.

So how can a sleep diary help you?

By recording in more detail your sleep pattern and habits, a sleep diary can help you see the connection between your habits and your sleep.

Let’s look at how Scott used his sleep diary…

Scott has problems sleeping following his stroke. Select the arrow keys to see what Scott did to help him sleep.
Scott is having difficulty sleeping.Scott decides to visit his GP for advice on how to get a better night's sleep. His GP Suggests trying a sleep diary.Scott fills in his sleep diary.Scott and his GP review his diary and identify ways to improve his sleep.Scott tries his GP's suggestions and is getting a better night's sleep.

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Scene 1: Scott: “I don’t know why I keep on waking up so early and I can’t get back to sleep. Maybe my GP can give me something to help me sleep.”
Keypoint: Scott is having difficulty sleeping. (Scott is sitting on the edge of his bed, the clock is showing 3am. Scott looks tired).

Scene 2: GP: “It sounds like this has been going on for a while. Let’s try a sleep diary as it will tell us more about what might be causing you to wake up.”
Keypoint: Scott decides to visit his GP for advice on how to get a better night’s sleep. His GP Suggests trying a sleep diary. (GP passes Scott a sleep diary).


Scene 3:

Scott’s Sleep Diary

Date: 07/03/15 Bedtime: 11pm Wake time: 3am Duration of sleep: 4 hours
Number of times awake at night: 2 Quality of sleep: Disturbed
Caffeine intake and time taken Alcohol intake and time taken Food/drink intake and time taken How are you feeling? Medications
4 mugs of coffee and 2 cups of tea throughout the day. Last taken at 9pm 3 large whiskys before bed at 11pm Dinner at 7pm. Mince & potatoes and rice pudding Achy and restless Simvastatin
Paracetamol

Keypoint: Scott fills in his sleep diary.


Scene 4:

Scott’s Sleep Diary

Date: 07/03/15 Bedtime: 11pm Wake time: 3am Duration of sleep: 4 hours
Number of times awake at night: 2 Quality of sleep: Disturbed
Caffeine intake and time taken Alcohol intake and time taken Food/drink intake and time taken How are you feeling? Medications
4 mugs of coffee and 2 cups of tea throughout the day. Last taken at 9pm 3 large whiskys before bed at 11pm Dinner at 7pm. Mince & potatoes and rice pudding Achy and restless Simvastatin
Paracetamol
Reduce caffeine intake, especially later in the day Reduce alcohol intake before bedtime Try taking dinner earlier especially if it is a big meal Review medication for pain

Keypoint: Scott and his GP review his diary together and identify ways to improve his sleep.


Scene 5:
Scott is in bed sleeping, he looks rested. The clock shows 3am.
Keypoint: Scott tries his GP’s suggestions and is getting a better night sleep.

If you would like to try a Sleep Diary like Scott you can:

Download the Patient.co.uk Sleep Diary [.pdf, 326 KB]
Patient.co.uk logo Used with permission from Patient.co.uk available at, http://www.patient.co.uk/health/sleep-diary (c) © 2015, Egton Medical Information Systems Limited. All Rights Reserved

Something to try

If you like using your smartphone, there are many apps available. You can explore this and see what works for you.

More information

John: am I ready yet?

By reading the newspaper articles you will have seen how self management can have many benefits. You maybe uncertain about taking the next step forward. Let’s hear John’s advice.

Sometimes, by weighing up the pro’s and con’s you can work out how to take things forward. By doing this you will see you are ready to use SelfHelp4Stroke and set some goals. Let’s have a look and see what I did.

Let’s see how John moved forward towards self management.

How do I get involved?

Now that you are considering joining an organised activity, sports club or exercise programme, here are some questions which you may find useful to ask and write down the answers.

How do I find out more?

  • Find contact details
  • Telephone or email to find out more details about the activity
  • If there is a website, use it to find information on the activity
  • Speak to somebody who already goes
  • Go along to visit if possible
  • Look at GP notice board
  • If you are not confident talking take someone with you to help

Is it appropriate for me?

  • Fitness class: Does the fitness instructor have experience working with people who have had a stroke?
  • What size is the class?
  • Do people with stroke or other conditions attend?
  • Are you required to check with your GP before attending?
  • Walking group: what distances do they do?
  • Do the walks include steep hills?
  • Are there places to rest?
  • Sport: What level do the members play at?
  • Is there a way of adapting the sport of required?
  • Is there a facility for playing for fun

How do I get there?

How far is it from your home?
Can you walk there?
Do you need to take bus?
Is there a direct bus route?
Is the stop outside the venue or nearby?
Do you need a buddy?
Do you have a taxi card/ use dial a bus?
Have you a wheelchair?
Is the venue wheelchair accessible?
Is the venue set up for wheelchair users- toilets etc.
Consider the internal environment-steps rails etc.

I’m going to do it!

Schedule a day and time to go.
Check start and finish times
Check access if the activity is in a building
Check access of toilet facilities
Plan how you are going to get there
Go along early to get settled
Take refreshments in case none available on site. ( Water)
Arrange to go along with a family member or friend

 

Something to try

Why don’t you print these questions and have them handy when looking into leisure activities?

More information